Teri, I have no words of wisdom but am sitting here sending you love with all my might♥️ I am so grateful to have found an author who moves forward with such clarity, honesty, courage and vulnerability. You are such a gift.
I meditate regularly. I'm not sure if you are familiar with metta but know I am sending you deep metta🕉️🪷 and will hold you close in my heart, always 🙏
I’m in awe of you dealing with this through a lifetime, Teri. I’m sorry you’ve had to endure discomfort and lack of solutions and medical insight. My graddaughter has EDS/Erlers Danlos Syndrome which affects her mobility and connective tissue. Like you, she’s learned to own it, adapt and get on with life. My heart goes out to you; wishing you peace and hope that there’s a better treatment soon. Hugs.
Thank you, Joan. I served quite a few students with Ehlers-Danlos in maybe the last ten years of working. Before that, it was more rare diagnosis to come across my desk. Not that you asked, but my advice to her is to cut herself some slack when she needs to.
Teri, my heart aches for you. I don’t know if it helps to hear it, but I feel helpless to even wrap my head around the things you have been, and are continuing, to live with. That picture of the knitting needles says everything. I hope there’s something out there - like some drug without horrible side effects - that can help. ❤️
Thanks so much. Don”t forget though that these things are variations of normal for me. They can be discouraging, annoying, or maddening for me, depending on the day. Almost never is it soul-crushing.
Teri, I don’t think anything could ever crush your soul. You are a person o Mike great dignity and moral courage. I’m hoping there’s some medical justice headed your way.
Teri, I really can’t even imagine how you had a successful career (requiring no doubt a high degree of concentration/focus) with constant itchiness. I guess like anything else, you adapt. Thank you for sharing all of this.
One thing I want to try to write about at some point is how I think I might “live in my head” more than the average bear. As I have gotten older, that has become harder to do. I am not sure if there is more discomfort to shut out or my concentration is weaker (kidding - not kidding.)
Teri, I have no words of wisdom but am sitting here sending you love with all my might♥️ I am so grateful to have found an author who moves forward with such clarity, honesty, courage and vulnerability. You are such a gift.
I meditate regularly. I'm not sure if you are familiar with metta but know I am sending you deep metta🕉️🪷 and will hold you close in my heart, always 🙏
Thanks for reading !
I’m in awe of you dealing with this through a lifetime, Teri. I’m sorry you’ve had to endure discomfort and lack of solutions and medical insight. My graddaughter has EDS/Erlers Danlos Syndrome which affects her mobility and connective tissue. Like you, she’s learned to own it, adapt and get on with life. My heart goes out to you; wishing you peace and hope that there’s a better treatment soon. Hugs.
Thank you, Joan. I served quite a few students with Ehlers-Danlos in maybe the last ten years of working. Before that, it was more rare diagnosis to come across my desk. Not that you asked, but my advice to her is to cut herself some slack when she needs to.
Exactly! Took forever to get diagnosed! She uses a cane and doesn’t drive, but otherwise you’d never know. Thanks for your words of wisdom. 😊
Teri, my heart aches for you. I don’t know if it helps to hear it, but I feel helpless to even wrap my head around the things you have been, and are continuing, to live with. That picture of the knitting needles says everything. I hope there’s something out there - like some drug without horrible side effects - that can help. ❤️
Thanks so much. Don”t forget though that these things are variations of normal for me. They can be discouraging, annoying, or maddening for me, depending on the day. Almost never is it soul-crushing.
Teri, I don’t think anything could ever crush your soul. You are a person o Mike great dignity and moral courage. I’m hoping there’s some medical justice headed your way.
Teri, I really can’t even imagine how you had a successful career (requiring no doubt a high degree of concentration/focus) with constant itchiness. I guess like anything else, you adapt. Thank you for sharing all of this.
One thing I want to try to write about at some point is how I think I might “live in my head” more than the average bear. As I have gotten older, that has become harder to do. I am not sure if there is more discomfort to shut out or my concentration is weaker (kidding - not kidding.)